Born with Treacher Collins syndrome, a rare genetic disorder that affects the formation of the face during the first trimester of pregnancy, Infant Hugh’s face was so severely deformed emergency surgery was performed moments after his birth just so he could breathe. Soon thereafter, he was deemed deaf and retarded. If Infant Hugh survived, it was believed he was destined to live out his life inside the walls of an institution. Yet his medical team fought valiantly to save this helpless infant’s life.